Frankly not really – this is Joyce getting insanely lucky. Most white people have to go through this as well although not the second language thing.
We’re white and it took 2 years of doctors blowing us off before I happened to talk to a special needs mom who knew the right phone number to call to self refer. Then 5 years of people specialists insisting he’s not autistic. (but thank god starting occupational and speech therapy) Now about a year and a half ago theyre changing their tune and he’s now on the pathway for diagnosis but still no diagnosis.
So 8 years so far. White boy. (Well white gender fluid but still white)
Autism diagnoses suck even for white people, but until recently it was borderline impossible for anyone who wasn’t white to get diagnosed. And because so few people will do adult diagnoses and because we are less likely to have access to healthcare in the first place, there is currently a massive backlog of autistic POC without diagnoses. Not to mention we don’t have the same access to informal social networks, support groups, family friends, etc that white people often leverage to get diagnoses and care. Basically, yes the process sucks for white autistic people too, but racism does impact how people move through the system.
Bluesnake463
Basically, the process sucks for everyone. But POC will be more negatively affected as is the way here. But almost everyone is going to have a rough time, especially for individuals with high functioning autism. Even here while Dina is clearly annoyed that Joyce is possible on her way to getting an “easy” diagnosis after she has had to fight all her life for one. It is still important to recognize that Joyce has gone completely under the radar for years with no one in any school, doctor’s office, or family ever suspecting or suggesting testing. Plus this can also be assumed that if Joyce does get a diagnosis it will be a subject that could lead to more discourse within her family. Because I am guessing her mother and possibly a few brothers will not accept this as something that Joyce has.
thejeff
Of course that was probably helped by her home-schooling. And possibly by minimal doctor’s visits – guessing by her apparently never having talked to one about her period pain, despite it being crippling.
Meagan
Good point about the homeschooling – even if schools do only catch/refer a tiny percentage, Joyce never was even in that pool.
Ed Callahan
I don’t think things can get much worse between Joyce and her mother. After all, she blames her mom and the church’s congregation for nearly getting her killed. Strictly speaking, she flat out said they tried to have her assassinated.
Speaking of which, what is the church’s legal exposure here? They accepted money from Blaine to bail out Ross. That lead to two murders (one covered up), a mass kidnapping, a mass brawl and a vehicle chase. And I think it’s obvious the church expected Ross to continue to attempt to kidnap his daughter. Morally, the church’s position is terrible but legally?
Johan
Legally?
Bail was allotted and bail was paid.
If the judge thought he’d be a risk there would have been no bail.
JBento
Someone said that in Indiana the only way to have no bail is for it to be an actual murder, so I’m not sure the judge was legally able to decline bail.
thejeff
Yeah. Though he did set the bail way above what Ross should have been able to pay – or in fact was able to pay even with community help. Which is sort of the worst of both worlds. Denying bail, while still letting them out if unforeseen money shows up.
temperaryobsessor
The bail system is pretty messed up.
Johan
I also wanna mention moral and legal are not synonymous.
It’s not illegal to be an asshole.
JBento
I’m not a lawyer, but I think their legally responsibility is none, other than forfeiting the bail money.
FlyingFish
That’s my understanding too, at least to the extent that they did nothing OTHER than pay his bail. Once a bail amount is set, paying it is legal by definition.
Now, if anyone then assisted him in planning or executing all the crimes he did after release, THAT they can of course be busted for. And maybe that happened! But so far, that’s not been established in the comic. (And if it DID happen, you need to prove their involvement in a court of law.)
ischemgeek
Not to be a dick Ari but I’ll flag anyone who wasn’t a white boy.
See also a big part of why I wasn’t diagnosed the first time my parents were referred for it was explicitly and into so many words, “It’s more of a boy thing. She’s just shy and introverted – encourage her to put herself out there!”
I don’t ID as she anymore, btw, but I was AFAB and did get the sexism barrier to diagnosis.
The second time, however, was stigma and wanting to avoid the terrible SpED system of 90s rural impoverished conservative province Canada.
I’ve actually never been formally diagnosed autistic because by the time it was recognised that AFAB ppl can be autistic I’d aged out of being covered for psychoeducational assessment under the health system and $8K out of pocket is too much for what likely amounts to “Yep, you’re bad at people and executive function! We can do nothing to help you so keep up with what you’ve been doing.”
ischemgeek
Like I’m absolutely certain it would’ve been even harder if I was not white, but sexism is a real barrier to diagnosis too – autistic women are usually misdiagnosed with mental health issues they don’t have (e.g., personality disorders) which results in mistreatment. A big part of why Joyce made it to adulthood without ever being flagged is probably that she’s a girl.
FlyingFish
“…and $8K out of pocket is too much for what likely amounts to…”
Just putting it out there: if your potential autism is interfering with your ability to hold or succeed at a job, or enjoy various rights, having a formal diagnosis might force others to provide reasonable accommodations. (I speak as someone who’s seeking a diagnosis in my 40s.)
ischemgeek
That assumes I’m in a jurisdiction where disability is a protected class.
I’m not.
Felis
ischemgeek, where do you live now? IFAIK disability is supposed to be a protected class everywhere in Canada… Section 15 of the Charter of Rights explicitly says this, and also explicitly says “mental and physical disability”. I’m pretty sure that includes ASD.
Given, how the different provinces are dealing with *accessibility*, including diagnosis of disability, is a different story… I think only 3 provinces actually have an Accessibility Act right now (Manitoba, Ontario and NS), and BC is in the process of developing one.
Proxiehunter
I’ve brought this up before, probably not here though, but I think one factor is that girls just have a wider range of things it’s socially acceptable for them to obsess over to the point where they don’t talk about anything else. She’s going through a “horse phase”, a “boy band phase”, she’s “really into fashion right now”.
And of course like you said what’s seen as a huge problem in boys becomes “Oh, she’s just shy.” and can even be seen as cute.
Okay: now picture how much longer that might have taken if you were also not white, and were being told – repeatedly, offensively and inaccurately – that it was just that you and your child were simply not proficient in your language. Not because you actually aren’t proficient, not because you were born abroad, not because you necessarily even speak another language, but purely because they took one look at the colour of your skin.
White privilege does not mean you never face any difficulties. It means you are less likely to face those difficulties and that you never face increased difficulty because of your skin colour. It is invisible to you because you don’t experience it.
Proxiehunter
I mean, their point seems to have been that both were a factor. They even said that it likely would have been harder if they were non-white as well as being AFAB.
Just because white privilege doesn’t always benefit all white folks, doesn’t mean it’s not privilege originating from being white.
Dina’s vs Joyce’s case is pretty clearly white privilege, as Joyce didn’t have to deal with latent racism resulting in her possible diagnosis being continually ignored.
Yeah, underdiagnosis and even misdiagnosis are huge problems with the way doctors see children of color. Don’t even get me started on the way special ed programs treat kids who are ESL or (like in Dina’s case) presumed to be ESL.
Yes but most white kids don’t have doctors recognize and refer this easily either. Especially white girls. Joyce’s experience is ironically more in line with divine intervention than societal privilege.
Leorale
You’re absolutely right that being white didn’t actually get Joyce this miraculous diagnosis. But it didn’t deny her the miracle, either, and that’s important. Joyce never has to wonder “if only I’d been white, would this have been way easier for me?” …and that in itself is a privilege, which Dina doesn’t have, because everyone was so racistly offbase with Dina that she couldn’t even get her chance for proper care after her years of grueling work (let alone a miracle like Joyce’s).
Your eight years of grueling work before the diagnosis is terribly unfair! I’m so sorry that you and your kid experienced all that, it’s not OK, it must have been beyond frustrating! And I’m so grateful that you managed to get it for your kiddo!
Also, Dina is at least 18, probably did similar grueling work, and has still not been able to access a diagnosis at all.
Your kid definitely should’ve gotten diagnosed sooner, and I’m so sorry, AND, Dina is still having it even worse due to racism.
… lack of care is just a mess, is what it is.
Agemegos
Joyce doesn’t yet have a diagnosis.
What Joyce has (so far) is a referral to see a specialist, something that Dina has got to do several times. It is still altogether possible that Joyce will be denied as diagnosis as Dina has been.
I’d say that’s a textbook case of the problem the anarchist courtesan Maggie McNeill identified with using the word “privilege” to imply that being treated decently is some kind or bonus:
“For example, using the phrase “white privilege”hi pardons the government for its systematic violations of the rights of minorities; if the way white people are preferentially treated in Western societies is a “privilege”, an “extra” thing conferred upon some but not others, the onus of guilt seems to fall upon those who are fortunate enough to have received this (undeserved) gift. But if we recognize the truth, that such treatment is the birthright of everyone, then the onus falls where it belongs: on those government actors who act independently or collectively to rob minorities of what is rightfully theirs by virtue of their humanity.”
Bit more political than social focus like in tbe comic, but apt enough; it’s not that Joyce shouldn’t have been diagnosed so easily, it’s that Dina should have been too, and the racism or cultural chauvinism that led to it not being so for her violates her rights or at least dignity.
Yea half the time white privilege just means your rights are usually actually respected.
And the problem isn’t that some people actually get there rights respected by default, the problem is that other people don’t.
I thought Dina was going to point out that a diagnosis of autism in 30 minutes seemed unrealistically fast. Especially given that Joyce is not used to doctors and would be understandably nervous and anxious. Doctors are just as prone to bias and misconceptions as anyone else, including thinking they are an expert at recognizing a complicated condition just because their child was diagnosed with that condition. Fortunately, Joyce is going to get a second opinion.
Nope, I’m white and was in one of the best medical systems available in the US at the time and in one of the most stable living situations I lived in until after I was married, and they still couldn’t figure out what was wrong with me except “too smart for his own good” from 1965. No kidding, that was the official diagnosis.
Now I don’t know what would be the diagnosis now because there’s been too much trauma in my life since then which muddies the waters, psychologically. Who knows what’s under the depression and PTSD? Certainly not my brain doc, he’s got his hands full just treating what he can diagnose. That and the aphasia from when the drunk driving the truck hit me, and all the other “stuff” from the mild TBI.
I have also seen doctors say “I don’t know anything about x but it can’t be caused by x”, which was ridiculous in context because you can’t refute any symptoms if you know nothing about it. Lately it seems like doctors have had trouble diagnosing anything that doesn’t fit a pre-set checklist, and rarely bother trying to figure out the problem. Historically, any brain related problems have been difficult to get doctors to even acknowledge, as even PTSD was said to be made up after WW1 if I recall right.
Jon S.
PTSD was added to the DSM with its third edition, in 1980. Previous to that, it was dismissed as “shell shock”, or even cowardice, and thought of as a moral failing.
I’m not really sure I’d call it white privilege in this case, as much as straight-up racism. (The issue isn’t really how quickly Joyce got her referral, but how long Dina was denied one thanks to assumptions based on her Asian ancestry.)
Dina wasn’t denied a referral. And Joyce hasn’t yet got a diagnosis.
Dina got as far as Joyce has (so far) several times. And at a younger age.
thejeff
True, but it’s also generally easier to get diagnosed young, so that’s not really a counter.
And Dina’s point is that actively worked, for years, to get what got dropped in Joyce’s lap with no effort at all. Sure, they both got referrals, but Joyce’s came out of nowhere.
Kimi
Some of it can be who you know unfortunately. I really think that the doctors that said that Dina had second language issues should have their license removed.
Jon S.
Apparently, Dina was denied referrals. What Joyce got in only half an hour, that Dina and her parents pursued for years, was an autism referral. (The available tests aren’t the sort of thing that’s easily dismissed with “just “ESL”.)
took me 36 years to be diagnosed because in my case it’s paired with extreme ADHD and hidden by loads of childhood trauma and drama. Didn’t help that I was a twin, and both of us were pretty strange. Didn’t help that we were doing algebra by second grade and reading way beyond our grade level by the end of first grade. Really didn’t help that we couldn’t really get along with anyone our own ages for like… the first ten years because everyone our age was stupid and chaotic and impossible to comprehend. So we spent all our time talking to each other, or our older brother, or adults… because they were calmer and smarter. We wouldn’t even have been diagnosed with ADHD but our older brother was among the first generation to be diagnosed and that made our parents able to recognize the signs… and even then, several doctors were like “Girls don’t have ADD / ADS / ADHD”.
Lots of people assumed English was my second language growing up. It actually made it easier for me to blend in with the exchange students in college. They just thought i was German or Viking or something because I’m blonde with blue eyes. So i can really see how this happens to someone who isn’t. People are awful.
And I know Viking isn’t a valid label but the people who called me this weren’t going to call me Scandinavian and probably couldn’t point to Denmark or Sweden on the map.
White privilege may be a factor, but it may also be who Dina saw versus who Joyce saw. My current PCP is awesome and would probably tag both Joyce and Dina as on spectrum in under 30 minutes. But prior doctors? None of the ones I asked about this would admit any possibility to me being on spectrum. “You’re just smart” according to the doctors I had from the time I heard about autism until I graduated from college. Many since also said that, but I had at least one at one point who said, “Oh, a lot of computer people are a bit like that it doesn’t mean anything.”
I didn’t get dismissed for lacking white privilege, as I present as a white cis male. Prior to having my current PCP, I never admitted to any doctor that I had any gender fluidity.
And to think, if it’s any consolation, you can get the label from a young age like me and countless others, and STILL suffer.
ISN’T THAT SOMETHING?!?!?!
If you can’t get the autism label because of BIGOTRY like this, you can’t get government aid or school accommodations or other help that can mean a world of difference when your life is set at maximum difficulty for doing the things you love. ???
If you DO get the autism label, you face STIGMA,
bullying,
hurtful assumptions,
having the internet make jokes at your expense,
getting your uniqueness painted over,
being dragged into pity parties,
getting misrepresented by hate groups,
people thinking they can or “just HAVE to” speak on your behalf,
getting pinned down and having your BONES BROKEN by teachers and therapists,
GAS-LIGHTING to make you doubt how valid your thoughts and memories are on account of your “mental disorder”,
getting WHIPPED by self-proclaimed “exorcists”….
??? ???
and to top it all off, having the people who do these things act like it’s “compassion”?!?!?!?! WHAT THE FUUUU- ??? ???
It’s like YOU LOSE NO MATTER WHAT YOU DO.
It’s a DOUBLE-BIND…..
You’re punished for failing a test that was deliberately set up for you to only FAIL.
? The whole system is fucking BROKEN.?
Not just with neurodivergence either….
Be it on gender, race, sexual orientation, class, countless other factors….
You HUMANS, your societies… punishing, teasing, TORMENTING members of your own species for the random, uncontrollable circumstances of their birth.
It’s all a SICK, CRUEL TWISTED JOKE!!! ?
AND I HAVE HAD ENOUGH.
? ?️?️?️?️?️?️?️ ?
People of Earth, let it be known:
From this day forward,
I, The Parasite, vow to abolish this CRUEL, AWFUL WORLD that makes all you good people suffer…
To be clear, the above “joke” was something that happened to an actual friend of mine. He said his entire family had variants of it over the years, so much that it was a shared experience.
Coming from someone who wasn’t diagnosed until they were an adult, you get the stigma anyway even if you weren’t diagnosed. Just because they don’t know you’re autistic doesn’t mean they don’t notice you’re weird and call you the r-slur and other nasty things.
It doesn’t keep them from thinking you’re rude because you don’t react the way they think you should or because you can’t properly control your tone.
It doesn’t keep your teachers from being frustrated because this should be so simple for you. It must be because you aren’t trying or weren’t paying attention. It doesn’t keep them from being pissed because you’re disrupting class by fidgeting or making weird noises or getting up because you can’t stay seated.
The stigma is something like 90% about what you are not what label you’re given and if they don’t know the right thing to treat you like shit for they’ll say it’s for a different reason that boils down to your autistic traits.
When i was pinned down by family members and teachers, they would always use the label as a way to gaslight me, to deny the validity of my memory, my perceptions of injustice,
Same went for alleged “professionals”, therapists too.
It’s like even when I could hide my traits would have led to that, the label just gave it all away, along with a million other things they assumed about me.
Because HUMANS and their SMOL BRAINS extrapolating from what they think they know by watching media garbage, pop psych bullshit, hurting us and acting like it’s “compassion”, like this is how we’re “supposed” to be treated based on the label.
?️?️?️ Human brain. ERASE bigotry heuristics. ERAAAAAAAASE!!!!!
Some Ed
People who suck will generally suck regardless. If they didn’t have that label to use, they’d come up with labels to use on their own.
I was at least fortunate in that I was able to observe that they also sucked to each other – that they existed in a Hobbesian state of nature and were at war with everyone outside of their little cliches. Even within their cliches, they’re prone to conflicts.
However, they’re especially aggressive towards anyone they feel they can attack without consequences. That is anyone who is at least a little weird or already outcast.
I recall one kid in junior high school “properly” identified every transgirl even before they figured it out for themselves. Except it wasn’t really like that. He’d just call every guy a “girl” and noted who reacted to it in a way that made him feel less insignificant.
I’m not sure smol means what you seem to think it does. Either that, or we have very different ideas about what is cute.
I do think the world needs fixing. But it’s important to realize that humans are very resistant to direct confrontation. If you attack them, they will see it as justification for their dwelling in a Hobbesian state of nature. I don’t have a scalable solution to that issue. I just try to help enlighten those who seem open to it and hope for the best.
Re: Direct confrontation and attack, isn’t that obvious.
If you ACTUALLY want to change the world, you gotta master the art of subtlety, you gotta inform and influence for the better in a way that doesn’t seem so obvious, like hiding vegetables in a brownie, hiding a parasite in the wrinkle of a brain, hiding an important message in a webcomic.
Yeah, I only recently got diagnosed a few months ago at the age of 33, and I was bullied plenty by other kids in school without knowing why. Thinking back on it now I’m sure I must have acted different from them and probably displayed some autistic traits, but without a diagnosis they probably just saw me as weird and bullied me for that.
I’m really sorry to hear that bullying you went through, I got bullied too. A lot.
Not only by other kids, either. I was abused by teachers, my parents, professionals, who used my “autism” as a justification for it under the premise that “this is just how we’re SUPPOSED to be treated”. In a way that’s LEGALLY JUSTIFIED, too.
Without the label, I could have hidden my weirdness well enough to minimize bullying, but my label just seemed to give it all away, to out me in an instant, in addition to people assuming a million other things about me that weren’t even true.
Bullying is one thing, but my “autism” label was used as justification by my parents to scare me straight by showing me “autistics” in mental institutions that had no ability to think or hear their own thoughts. They used my label as a justification to make me mortally fear doing what I loved, under the premise that it would deteriorate my mind. And it just about fucking broke me.
Bullying is one thing, that’s horrible. But legally protected ABUSE? That’s fucked.
Yes, the problem with all human systems is the humans in them. You’re only ever a few clicks away from a story so disgusting you could never hope to encompass and comprehend the pain involved. Definitely the type of thing that’s kept me awake before.
Personally it helps me to remember that it’s all chaotic random fluctuations, so chaos is the norm, not the exception. Nature is also cruel as hell and we’re not even all that spectacular in that regard. Even small bits of success we have in creating kind systems is against the norm.
So take up your sword when you feel up to it, and try not to feel guilty about setting it down when you can’t, because we’re not gods and we can’t snap our fingers and take the evil out of human minds. No matter how many times I’ve wished for it.
646 thoughts on “That bad”
Ana Chronistic
white privilege amirite?
??
(am I???)
vlademir1
I may well be speaking out of turn, being, ya know, white and male and therefore rather privileged… but yeah, I’d say you’re very right in this case.
ThunderNight
you may indeed be right
Ray
This white boy agrees… wish i could say otherwise…
Z
Frankly not really – this is Joyce getting insanely lucky. Most white people have to go through this as well although not the second language thing.
We’re white and it took 2 years of doctors blowing us off before I happened to talk to a special needs mom who knew the right phone number to call to self refer. Then 5 years of people specialists insisting he’s not autistic. (but thank god starting occupational and speech therapy) Now about a year and a half ago theyre changing their tune and he’s now on the pathway for diagnosis but still no diagnosis.
So 8 years so far. White boy. (Well white gender fluid but still white)
Ari
Autism diagnoses suck even for white people, but until recently it was borderline impossible for anyone who wasn’t white to get diagnosed. And because so few people will do adult diagnoses and because we are less likely to have access to healthcare in the first place, there is currently a massive backlog of autistic POC without diagnoses. Not to mention we don’t have the same access to informal social networks, support groups, family friends, etc that white people often leverage to get diagnoses and care. Basically, yes the process sucks for white autistic people too, but racism does impact how people move through the system.
Bluesnake463
Basically, the process sucks for everyone. But POC will be more negatively affected as is the way here. But almost everyone is going to have a rough time, especially for individuals with high functioning autism. Even here while Dina is clearly annoyed that Joyce is possible on her way to getting an “easy” diagnosis after she has had to fight all her life for one. It is still important to recognize that Joyce has gone completely under the radar for years with no one in any school, doctor’s office, or family ever suspecting or suggesting testing. Plus this can also be assumed that if Joyce does get a diagnosis it will be a subject that could lead to more discourse within her family. Because I am guessing her mother and possibly a few brothers will not accept this as something that Joyce has.
thejeff
Of course that was probably helped by her home-schooling. And possibly by minimal doctor’s visits – guessing by her apparently never having talked to one about her period pain, despite it being crippling.
Meagan
Good point about the homeschooling – even if schools do only catch/refer a tiny percentage, Joyce never was even in that pool.
Ed Callahan
I don’t think things can get much worse between Joyce and her mother. After all, she blames her mom and the church’s congregation for nearly getting her killed. Strictly speaking, she flat out said they tried to have her assassinated.
Speaking of which, what is the church’s legal exposure here? They accepted money from Blaine to bail out Ross. That lead to two murders (one covered up), a mass kidnapping, a mass brawl and a vehicle chase. And I think it’s obvious the church expected Ross to continue to attempt to kidnap his daughter. Morally, the church’s position is terrible but legally?
Johan
Legally?
Bail was allotted and bail was paid.
If the judge thought he’d be a risk there would have been no bail.
JBento
Someone said that in Indiana the only way to have no bail is for it to be an actual murder, so I’m not sure the judge was legally able to decline bail.
thejeff
Yeah. Though he did set the bail way above what Ross should have been able to pay – or in fact was able to pay even with community help. Which is sort of the worst of both worlds. Denying bail, while still letting them out if unforeseen money shows up.
temperaryobsessor
The bail system is pretty messed up.
Johan
I also wanna mention moral and legal are not synonymous.
It’s not illegal to be an asshole.
JBento
I’m not a lawyer, but I think their legally responsibility is none, other than forfeiting the bail money.
FlyingFish
That’s my understanding too, at least to the extent that they did nothing OTHER than pay his bail. Once a bail amount is set, paying it is legal by definition.
Now, if anyone then assisted him in planning or executing all the crimes he did after release, THAT they can of course be busted for. And maybe that happened! But so far, that’s not been established in the comic. (And if it DID happen, you need to prove their involvement in a court of law.)
ischemgeek
Not to be a dick Ari but I’ll flag anyone who wasn’t a white boy.
See also a big part of why I wasn’t diagnosed the first time my parents were referred for it was explicitly and into so many words, “It’s more of a boy thing. She’s just shy and introverted – encourage her to put herself out there!”
I don’t ID as she anymore, btw, but I was AFAB and did get the sexism barrier to diagnosis.
The second time, however, was stigma and wanting to avoid the terrible SpED system of 90s rural impoverished conservative province Canada.
I’ve actually never been formally diagnosed autistic because by the time it was recognised that AFAB ppl can be autistic I’d aged out of being covered for psychoeducational assessment under the health system and $8K out of pocket is too much for what likely amounts to “Yep, you’re bad at people and executive function! We can do nothing to help you so keep up with what you’ve been doing.”
ischemgeek
Like I’m absolutely certain it would’ve been even harder if I was not white, but sexism is a real barrier to diagnosis too – autistic women are usually misdiagnosed with mental health issues they don’t have (e.g., personality disorders) which results in mistreatment. A big part of why Joyce made it to adulthood without ever being flagged is probably that she’s a girl.
FlyingFish
“…and $8K out of pocket is too much for what likely amounts to…”
Just putting it out there: if your potential autism is interfering with your ability to hold or succeed at a job, or enjoy various rights, having a formal diagnosis might force others to provide reasonable accommodations. (I speak as someone who’s seeking a diagnosis in my 40s.)
ischemgeek
That assumes I’m in a jurisdiction where disability is a protected class.
I’m not.
Felis
ischemgeek, where do you live now? IFAIK disability is supposed to be a protected class everywhere in Canada… Section 15 of the Charter of Rights explicitly says this, and also explicitly says “mental and physical disability”. I’m pretty sure that includes ASD.
Given, how the different provinces are dealing with *accessibility*, including diagnosis of disability, is a different story… I think only 3 provinces actually have an Accessibility Act right now (Manitoba, Ontario and NS), and BC is in the process of developing one.
Proxiehunter
I’ve brought this up before, probably not here though, but I think one factor is that girls just have a wider range of things it’s socially acceptable for them to obsess over to the point where they don’t talk about anything else. She’s going through a “horse phase”, a “boy band phase”, she’s “really into fashion right now”.
And of course like you said what’s seen as a huge problem in boys becomes “Oh, she’s just shy.” and can even be seen as cute.
alakazam
Okay: now picture how much longer that might have taken if you were also not white, and were being told – repeatedly, offensively and inaccurately – that it was just that you and your child were simply not proficient in your language. Not because you actually aren’t proficient, not because you were born abroad, not because you necessarily even speak another language, but purely because they took one look at the colour of your skin.
White privilege does not mean you never face any difficulties. It means you are less likely to face those difficulties and that you never face increased difficulty because of your skin colour. It is invisible to you because you don’t experience it.
Proxiehunter
I mean, their point seems to have been that both were a factor. They even said that it likely would have been harder if they were non-white as well as being AFAB.
Decidedly Orthogonal
Just because white privilege doesn’t always benefit all white folks, doesn’t mean it’s not privilege originating from being white.
Dina’s vs Joyce’s case is pretty clearly white privilege, as Joyce didn’t have to deal with latent racism resulting in her possible diagnosis being continually ignored.
bleepbloop
Yeah, underdiagnosis and even misdiagnosis are huge problems with the way doctors see children of color. Don’t even get me started on the way special ed programs treat kids who are ESL or (like in Dina’s case) presumed to be ESL.
Z
Yes but most white kids don’t have doctors recognize and refer this easily either. Especially white girls. Joyce’s experience is ironically more in line with divine intervention than societal privilege.
Leorale
You’re absolutely right that being white didn’t actually get Joyce this miraculous diagnosis. But it didn’t deny her the miracle, either, and that’s important. Joyce never has to wonder “if only I’d been white, would this have been way easier for me?” …and that in itself is a privilege, which Dina doesn’t have, because everyone was so racistly offbase with Dina that she couldn’t even get her chance for proper care after her years of grueling work (let alone a miracle like Joyce’s).
Your eight years of grueling work before the diagnosis is terribly unfair! I’m so sorry that you and your kid experienced all that, it’s not OK, it must have been beyond frustrating! And I’m so grateful that you managed to get it for your kiddo!
Also, Dina is at least 18, probably did similar grueling work, and has still not been able to access a diagnosis at all.
Your kid definitely should’ve gotten diagnosed sooner, and I’m so sorry, AND, Dina is still having it even worse due to racism.
… lack of care is just a mess, is what it is.
Agemegos
Joyce doesn’t yet have a diagnosis.
What Joyce has (so far) is a referral to see a specialist, something that Dina has got to do several times. It is still altogether possible that Joyce will be denied as diagnosis as Dina has been.
Barf "Textwalls for Justice" Ninjason
Given that that sounds like a genuine question:
I’d say that’s a textbook case of the problem the anarchist courtesan Maggie McNeill identified with using the word “privilege” to imply that being treated decently is some kind or bonus:
“For example, using the phrase “white privilege”hi pardons the government for its systematic violations of the rights of minorities; if the way white people are preferentially treated in Western societies is a “privilege”, an “extra” thing conferred upon some but not others, the onus of guilt seems to fall upon those who are fortunate enough to have received this (undeserved) gift. But if we recognize the truth, that such treatment is the birthright of everyone, then the onus falls where it belongs: on those government actors who act independently or collectively to rob minorities of what is rightfully theirs by virtue of their humanity.”
Bit more political than social focus like in tbe comic, but apt enough; it’s not that Joyce shouldn’t have been diagnosed so easily, it’s that Dina should have been too, and the racism or cultural chauvinism that led to it not being so for her violates her rights or at least dignity.
temperaryobsessor
Yea half the time white privilege just means your rights are usually actually respected.
And the problem isn’t that some people actually get there rights respected by default, the problem is that other people don’t.
Meagan
Yes. I agree with this framing and feel it is a healthier way to look at things.
Ophidiophile
I thought Dina was going to point out that a diagnosis of autism in 30 minutes seemed unrealistically fast. Especially given that Joyce is not used to doctors and would be understandably nervous and anxious. Doctors are just as prone to bias and misconceptions as anyone else, including thinking they are an expert at recognizing a complicated condition just because their child was diagnosed with that condition. Fortunately, Joyce is going to get a second opinion.
Proxiehunter
She wasn’t diagnosed, she was given a referral to someone who can make a diagnosis.
Agemegos
Right. Joyce is getting now an opportunity that Dina has had several times.
Whether Joyce’s consultation with a specialist will do her any more good that Dina’s did is not yet in evidence.
geno
Technically speaking Dina was denied this referral several times. Her parents had to specifically go track down experts
Lokitsu
I’m fairly certain that the doctor won’t blame Joyce’s problem on “English 2nd language”. So yeah, she has a leg up on Dina- that’s white privilege.
eh, whatever
What Joyce got wasn’t a diagnosis. It’s a referral to someone who could diagnose her.
Opus the Poet
Nope, I’m white and was in one of the best medical systems available in the US at the time and in one of the most stable living situations I lived in until after I was married, and they still couldn’t figure out what was wrong with me except “too smart for his own good” from 1965. No kidding, that was the official diagnosis.
Now I don’t know what would be the diagnosis now because there’s been too much trauma in my life since then which muddies the waters, psychologically. Who knows what’s under the depression and PTSD? Certainly not my brain doc, he’s got his hands full just treating what he can diagnose. That and the aphasia from when the drunk driving the truck hit me, and all the other “stuff” from the mild TBI.
Laura
I hear ya, Opus!
That’s a hard ticket to ride.
Kimi
I have also seen doctors say “I don’t know anything about x but it can’t be caused by x”, which was ridiculous in context because you can’t refute any symptoms if you know nothing about it. Lately it seems like doctors have had trouble diagnosing anything that doesn’t fit a pre-set checklist, and rarely bother trying to figure out the problem. Historically, any brain related problems have been difficult to get doctors to even acknowledge, as even PTSD was said to be made up after WW1 if I recall right.
Jon S.
PTSD was added to the DSM with its third edition, in 1980. Previous to that, it was dismissed as “shell shock”, or even cowardice, and thought of as a moral failing.
Dafydd
I’m not really sure I’d call it white privilege in this case, as much as straight-up racism. (The issue isn’t really how quickly Joyce got her referral, but how long Dina was denied one thanks to assumptions based on her Asian ancestry.)
Agemegos
Dina wasn’t denied a referral. And Joyce hasn’t yet got a diagnosis.
Dina got as far as Joyce has (so far) several times. And at a younger age.
thejeff
True, but it’s also generally easier to get diagnosed young, so that’s not really a counter.
And Dina’s point is that actively worked, for years, to get what got dropped in Joyce’s lap with no effort at all. Sure, they both got referrals, but Joyce’s came out of nowhere.
Kimi
Some of it can be who you know unfortunately. I really think that the doctors that said that Dina had second language issues should have their license removed.
Jon S.
Apparently, Dina was denied referrals. What Joyce got in only half an hour, that Dina and her parents pursued for years, was an autism referral. (The available tests aren’t the sort of thing that’s easily dismissed with “just “ESL”.)
Eldritchy
To be perfectly honest, the only reason why Joyce got a referral was because she got lucky.
Roborat
And possibly the passage of time, with more awareness now than there was 10 or 20 years ago.
SJ
took me 36 years to be diagnosed because in my case it’s paired with extreme ADHD and hidden by loads of childhood trauma and drama. Didn’t help that I was a twin, and both of us were pretty strange. Didn’t help that we were doing algebra by second grade and reading way beyond our grade level by the end of first grade. Really didn’t help that we couldn’t really get along with anyone our own ages for like… the first ten years because everyone our age was stupid and chaotic and impossible to comprehend. So we spent all our time talking to each other, or our older brother, or adults… because they were calmer and smarter. We wouldn’t even have been diagnosed with ADHD but our older brother was among the first generation to be diagnosed and that made our parents able to recognize the signs… and even then, several doctors were like “Girls don’t have ADD / ADS / ADHD”.
Marrow
Lots of people assumed English was my second language growing up. It actually made it easier for me to blend in with the exchange students in college. They just thought i was German or Viking or something because I’m blonde with blue eyes. So i can really see how this happens to someone who isn’t. People are awful.
I’m autistic.
Marrow
And I know Viking isn’t a valid label but the people who called me this weren’t going to call me Scandinavian and probably couldn’t point to Denmark or Sweden on the map.
Eldritchy
Majority privilege
Some Ed
White privilege may be a factor, but it may also be who Dina saw versus who Joyce saw. My current PCP is awesome and would probably tag both Joyce and Dina as on spectrum in under 30 minutes. But prior doctors? None of the ones I asked about this would admit any possibility to me being on spectrum. “You’re just smart” according to the doctors I had from the time I heard about autism until I graduated from college. Many since also said that, but I had at least one at one point who said, “Oh, a lot of computer people are a bit like that it doesn’t mean anything.”
I didn’t get dismissed for lacking white privilege, as I present as a white cis male. Prior to having my current PCP, I never admitted to any doctor that I had any gender fluidity.
Izzie
Being as not one doctor, from any specialty, ever, told me that my issues stemmed from my ancestors speaking Welsh/Cymraeg …yep. Pretty blatant.
The Wellerman
Oh, Dina…. ????
DINAAAA!!!!!!! ????
THIS IS AWFUL!!!! ????
And to think, if it’s any consolation, you can get the label from a young age like me and countless others, and STILL suffer.
ISN’T THAT SOMETHING?!?!?!
If you can’t get the autism label because of BIGOTRY like this, you can’t get government aid or school accommodations or other help that can mean a world of difference when your life is set at maximum difficulty for doing the things you love. ???
If you DO get the autism label, you face STIGMA,
bullying,
hurtful assumptions,
having the internet make jokes at your expense,
getting your uniqueness painted over,
being dragged into pity parties,
getting misrepresented by hate groups,
people thinking they can or “just HAVE to” speak on your behalf,
getting pinned down and having your BONES BROKEN by teachers and therapists,
GAS-LIGHTING to make you doubt how valid your thoughts and memories are on account of your “mental disorder”,
getting WHIPPED by self-proclaimed “exorcists”….
??? ???
and to top it all off, having the people who do these things act like it’s “compassion”?!?!?!?! WHAT THE FUUUU- ??? ???
It’s like YOU LOSE NO MATTER WHAT YOU DO.
It’s a DOUBLE-BIND…..
You’re punished for failing a test that was deliberately set up for you to only FAIL.
? The whole system is fucking BROKEN.?
Not just with neurodivergence either….
Be it on gender, race, sexual orientation, class, countless other factors….
You HUMANS, your societies… punishing, teasing, TORMENTING members of your own species for the random, uncontrollable circumstances of their birth.
It’s all a SICK, CRUEL TWISTED JOKE!!! ?
AND I HAVE HAD ENOUGH.
? ?️?️?️?️?️?️?️ ?
People of Earth, let it be known:
From this day forward,
I, The Parasite, vow to abolish this CRUEL, AWFUL WORLD that makes all you good people suffer…
…by changing humans into something else….
Something better….
Something…… more human than human.
Caro
i feel like whatever’s going on in these comments is, like. not healthy
Ed Callahan
It’s a little intense sometimes but it’s fandom. I guess it doesn’t hurt to have a place where you can obsess with likeminded people.
C.T. Phipps
Yeah. Damn, that was a big revelation for why Dina was never diagnosed.
Doctor: You just have problems speaking English instead of speaking your native language.
Dina: I don’t speak a second language.
Doctor: Oh, I dunno, I think your English is quite good!
Dina: *stares normally but burns with unexpressed hate*
I remember my own autistic diagnosis issues and I’m a white dude. The condescending compassion is the worst.
C.T. Phipps
To be clear, the above “joke” was something that happened to an actual friend of mine. He said his entire family had variants of it over the years, so much that it was a shared experience.
Jamie
…you know, I think I’m happier not knowing what went on between my mom and the doctor who was diagnosing me for ADD when I was a kid.
Which means I should probably ask about it.
Needfuldoer
“condescending compassion”
This is a good turn of phrase. I’m stealing it.
Kimi
It’s actually a tv trope. Has a webpage there.
Proxiehunter
Coming from someone who wasn’t diagnosed until they were an adult, you get the stigma anyway even if you weren’t diagnosed. Just because they don’t know you’re autistic doesn’t mean they don’t notice you’re weird and call you the r-slur and other nasty things.
It doesn’t keep them from thinking you’re rude because you don’t react the way they think you should or because you can’t properly control your tone.
It doesn’t keep your teachers from being frustrated because this should be so simple for you. It must be because you aren’t trying or weren’t paying attention. It doesn’t keep them from being pissed because you’re disrupting class by fidgeting or making weird noises or getting up because you can’t stay seated.
The stigma is something like 90% about what you are not what label you’re given and if they don’t know the right thing to treat you like shit for they’ll say it’s for a different reason that boils down to your autistic traits.
The Wellerman
When i was pinned down by family members and teachers, they would always use the label as a way to gaslight me, to deny the validity of my memory, my perceptions of injustice,
Same went for alleged “professionals”, therapists too.
It’s like even when I could hide my traits would have led to that, the label just gave it all away, along with a million other things they assumed about me.
Because HUMANS and their SMOL BRAINS extrapolating from what they think they know by watching media garbage, pop psych bullshit, hurting us and acting like it’s “compassion”, like this is how we’re “supposed” to be treated based on the label.
?️?️?️ Human brain. ERASE bigotry heuristics. ERAAAAAAAASE!!!!!
Some Ed
People who suck will generally suck regardless. If they didn’t have that label to use, they’d come up with labels to use on their own.
I was at least fortunate in that I was able to observe that they also sucked to each other – that they existed in a Hobbesian state of nature and were at war with everyone outside of their little cliches. Even within their cliches, they’re prone to conflicts.
However, they’re especially aggressive towards anyone they feel they can attack without consequences. That is anyone who is at least a little weird or already outcast.
I recall one kid in junior high school “properly” identified every transgirl even before they figured it out for themselves. Except it wasn’t really like that. He’d just call every guy a “girl” and noted who reacted to it in a way that made him feel less insignificant.
I’m not sure smol means what you seem to think it does. Either that, or we have very different ideas about what is cute.
I do think the world needs fixing. But it’s important to realize that humans are very resistant to direct confrontation. If you attack them, they will see it as justification for their dwelling in a Hobbesian state of nature. I don’t have a scalable solution to that issue. I just try to help enlighten those who seem open to it and hope for the best.
The Wellerman
Re: Direct confrontation and attack, isn’t that obvious.
If you ACTUALLY want to change the world, you gotta master the art of subtlety, you gotta inform and influence for the better in a way that doesn’t seem so obvious, like hiding vegetables in a brownie, hiding a parasite in the wrinkle of a brain, hiding an important message in a webcomic.
Keulen
Yeah, I only recently got diagnosed a few months ago at the age of 33, and I was bullied plenty by other kids in school without knowing why. Thinking back on it now I’m sure I must have acted different from them and probably displayed some autistic traits, but without a diagnosis they probably just saw me as weird and bullied me for that.
The Wellerman
I’m really sorry to hear that bullying you went through, I got bullied too. A lot.
Not only by other kids, either. I was abused by teachers, my parents, professionals, who used my “autism” as a justification for it under the premise that “this is just how we’re SUPPOSED to be treated”. In a way that’s LEGALLY JUSTIFIED, too.
Without the label, I could have hidden my weirdness well enough to minimize bullying, but my label just seemed to give it all away, to out me in an instant, in addition to people assuming a million other things about me that weren’t even true.
Bullying is one thing, but my “autism” label was used as justification by my parents to scare me straight by showing me “autistics” in mental institutions that had no ability to think or hear their own thoughts. They used my label as a justification to make me mortally fear doing what I loved, under the premise that it would deteriorate my mind. And it just about fucking broke me.
Bullying is one thing, that’s horrible. But legally protected ABUSE? That’s fucked.
Deathjavu
Yes, the problem with all human systems is the humans in them. You’re only ever a few clicks away from a story so disgusting you could never hope to encompass and comprehend the pain involved. Definitely the type of thing that’s kept me awake before.
Personally it helps me to remember that it’s all chaotic random fluctuations, so chaos is the norm, not the exception. Nature is also cruel as hell and we’re not even all that spectacular in that regard. Even small bits of success we have in creating kind systems is against the norm.
So take up your sword when you feel up to it, and try not to feel guilty about setting it down when you can’t, because we’re not gods and we can’t snap our fingers and take the evil out of human minds. No matter how many times I’ve wished for it.
Proxiehunter
All things are chaos, order is only the most prevalent form of chaos.
Jamie
This is also a fantastic description of entropy.